Sunday, October 11, 2009


Yesterday I got to talk a while with a doctor that I work with and asked her some questions about hsp.

  • She said (ask did our pediatrician) that the odds are in our favor of Julia making it through this disease with a full recovery and most likely without any lasting kidney damage, yet at the same she has a good chance of her kidney's being effected. Hope that makes sense.

  • HSP is genetic, (not that Jeremy and I have ever had this but we could be gene carriers) since Julia has gotten it now, her kids some day have a probable chance that they will get this too. The doctor also thinks that if we have anymore kids there is a very high chance they will develop an autoimmune disease as well since Julia has.

  • The last thing that was most significant in talking to this doctor is that Julia is a very high risk for obtaining a different autoimmune disease (since she has this one) at any point and time in her life. yuck. That was not anything I was wanting to hear.

On the bright side, we have discovered that Zyrtec is working VERY well for her in keeping most of her red/purple spots away. She is still in a lot of pain every now and then from her joints and stomach aching but the Tylenol seems to be sufficient for now. Although she may not feel well most of the time she still perks up to somehow find her way up to the top of the dining room table when we step out of the room.

God is soooo good. We have been blessed with meals, many prayers and Jeremy and I got to go to church today while my dad offered to stay with Julia. It was a very meaningful message. Pastor Dave spoke about worship and how it effects us and worshipping in our trials, celebrations and failures.

Psalm 118:24

This is the day that the Lord has made,

I will rejoice and be glad in it!


Utecht Family said...

We've been praying for all of you! Aching for little lovable Julia, but so thankful that you are trusting the Lord through all of this. We'll miss seeing Julia's bright smiling face in KM!

Cindy said...

I'll keep praying for you and your adorable Julia. So hard to understand, but trusting the Lord.